Non-Hodgkin Lymphoma
Resource for Patient, Family, and Clinician
Commentary by Thomas Sullivan
|
Access to all of your medical records….PRICELESS!!! |
|
|
|
|
This journal is written for the non-Hodgkin lymphoma patient, family members, designated care givers, and friends of the NHL patient. Here we provide a compelling amalgamation of inspirational stories. Here you will also find a news component which should be of some benefit to the non-Hodgkin lymphoma patient, and we provide a chat room which is about NHL and related topics. Our chat room allows for unlimited users and all we ask is that the conversations are kept within the realm of non-Hodgkin lymphoma and related topics.
Here you will find also my own perspective on this cancer, and cancer in general, with the hope that by knowing my story, some benefit may be realized by those who suffer from NHL.
In an effort to provide more information about non-Hodgkin lymphoma, I have also included a book store, which provides books, publications, and articles about non-Hodgkin lymphoma and cancer survival.
My wife was diagnosed with non-Hodgkin lymphoma ( indolent, follicular ) 13 years ago. Her disease is starting to pick up pace and is progressing more rapidly. I developed an understanding of how people around the world were able to conquer their cancer, and have come to the conclusion that indeed there is hope for my wife. I wanted to not only pass this information onto my wife, but also I wanted to make this information public so that it may be beneficial to other non-Hodgkin lymphoma patients by providing hope to their situation.
I have come to the realization that many people around the world have beat many types of cancer, even when told by their doctor they have very little chance of surviving. I have done some research into the capability of the human mind in terms of healing. One of the many aspects of the human mind, that separates us from animals, is that many diseases can be suppressed and in some cases completely eradicated with a positive attitude. In fighting a disease, having the proper attitude can mean the difference between living and dying. The mind does have an affect on the body, and having a positive outlook seems to be one of those major factors when it comes to eradicating a disease. There is of course a biological bases to this, but scientist in this field really do not have an understanding of the underlying mechanism.
What is known is that the human mind does have an effect on the outcome of a disease, and in the case of a positive attitude, the probability is greater for a favorable outcome. In most cases, this does not mean that attitude alone can result in conquering the disease, but rather a positive attitude is an integral component along with proper medical care for eradication of the disease.
A major contribution toward a positive attitude is the assimilation of how other patients were able to conquer their non-Hodgkin lymphoma. There is plenty of information online about non-Hodgkin lymphoma from a biological or medical perspective, but very little information in terms of inspirational stories. Hence the need for this journal.
Along with positive attitude and proper medical care, there is still one more very important component. This very important component is within the area of religion. What I found in my research is that people who statistically did better in terms of their disease, had a belief that God placed them on this earth for a purpose. These people tend to believe that we all have been placed on this earth for a purpose, and by being close to God, then and only then will you realize your purpose. People with this belief system tended to believe that their disease is only temporary and that disease is one of the ways God works in shaping us into the person he wants us to be. The story of Lance Armstrong is a clear example of how God works in shaping and molding us to fulfill his purpose.
The Lance Armstrong story is one of inspiration for not only non-Hodgkin lymphoma patients, but all cancer patients. In 1996 Armstrong discovered that he had testicular cancer, which had spread to his brain and lungs. The American cyclist, was given a 40 percent chance of surviving his cancer. After beating his cancer he won the prestigious Tour de France an unprecedented seven straight times, from 1999-2005. The Tour de France is the most prestigious cycling race in the world, and one of the most grueling events in all of sports. For more information on the Lance Armstrong story go to Lance Armstrong or go to CNN.com - Lance Armstrong. The Lance Armstrong story is truly amazing.
Lance Armstrong has said that if he did not have cancer, he would have not been able to achieve what he accomplished. Remember that in many cases, God gives us disease in order to shape us into the person he wants us to be. God wanted Lance Armstrong to be an inspiration and a beacon of hope for all cancer patients, and that is exactly what Lance Armstrong has become.
The Lance Armstrong story is one most of us know about because he has become a public figure due to media coverage. But believe me, there are similar stories developing every day that are not played out under the watchful eye of the media. So for the non-Hodgkins lymphoma patient, these stories of inspiration can be a catalyst for hope. Miracles do happen and you can be one of them, and if you do survive, the experience will most likely change you for the better, as it did with Lance Armstrong.
The following is a list of inspirational stories for the non-Hodgkin lymphoma patient. Following this list of stories, you will find the most current News From The Leukemia & Lymphoma Society. This news is updated daily.
Stories of Inspiration for the Non-Hodgkin Lymphoma Patient:
Eveyln MacDonald - Stage III Non-Hodgkin Lymphoma
Stage I Intermediate Grade Non-Hodgkin Lymphoma of the Breast
Amy Ardito - Stage IV follicular Non-Hodgkin Lymphoma
Yodfat Glazer - Stage IIIB Non-Hodgkin Lymphoma
Kenneth Shapiro - 25+ Year Survivor of Widely Metastatic Melanoma
My Miracle with NK Cell Leukemia
Terry Healey - At Face Value: My Struggle With A Disfiguring Cancer
Non-Hodgkin Lymphoma - Videos
Non-Hodgkin Lymphoma - Current News
Currently being rebuilt, will return shortly
Non-Hodgkin Lymphoma - Google News
©2008 Google
Non-Hodgkin Lymphoma - Google News
Cell Therapeutics calls clinical trial a success - Seattle Times
Cell Therapeutics calls clinical trial a success Seattle Times, United States - Cell Therapeutics said Tuesday that its lead experimental compound, Pixantrone, was effective in treating relapsed non-Hodgkin's lymphoma. ... Cell Therapeutics' Pixantrone Phase III (EXTEND) Pivotal Trial ... Cell Therapeutics' Pixantrone Hits Endpoint in Phase III Study Cell Therapeutics' Study of Pixantrone for NHL Achieves Primary ... |
New Data Will Be Presented at ASH on VELCADE(R) (Bortezomib) for ... - MarketWatch
New Data Will Be Presented at ASH on VELCADE(R) (Bortezomib) for ... MarketWatch - Additional data will be presented on VELCADE based therapies in patients with relapsed MM and non-Hodgkin's lymphoma (NHL). "The volume of data on VELCADE, ... |
Breast Implants Linked to Type of Non-Hodgkin Lymphoma Preliminary ... - Drug Topics Magazine
 TheMedGuru | Breast Implants Linked to Type of Non-Hodgkin Lymphoma Preliminary ... Drug Topics Magazine, NJ - "Continued epidemiologic research is critically needed to piece together the puzzle of non-Hodgkin lymphoma etiology, and the report by de Jong et al ... Silicone Breast Implants Might Raise Risk of Rare Lymphoma Silicon breast implants may heighten the risk of lymphoma Implants: Scientists finally make the connection to breast cancer |
Cell Therapeutics: pixantrone offers promise in non-Hodgkin's lymphoma - Trading Markets (press release)
Cell Therapeutics: pixantrone offers promise in non-Hodgkin's lymphoma Trading Markets (press release), CA - Nov 12, 2008 (Datamonitor via COMTEX) -- DNA | Quote | Chart | News | PowerRating -- Given that patients with relapsed aggressive non-Hodgkin's lymphoma are ... |
SuperGen Receives Clearance to Begin Clinical Trials With SGI-1776 ... - SYS-CON Media
SuperGen Receives Clearance to Begin Clinical Trials With SGI-1776 ... SYS-CON Media, NJ - ... acute myeloid leukemia and suppression of solid tumor growth and biomarker modulation in models of prostate adenocarcinoma and non-Hodgkin's lymphoma. ... |
Treanda® Approved for Relapsed Indolent Non-Hodgkin's Lymphoma - Cancer Consultants
Treanda® Approved for Relapsed Indolent Non-Hodgkin's Lymphoma Cancer Consultants, ID - ... B-cell non-Hodgkin's lymphoma that has progressed during or within six months of therapy with Rituxan® (rituximab) or Rituxan-containing regimens. ... Treanda® Approved for Recurrent NHL |
The Challenges of Epidemiologic Research in Non-Hodgkin Lymphoma - Journal of American Medical Association (subscription)
The Challenges of Epidemiologic Research in Non-Hodgkin Lymphoma Journal of American Medical Association (subscription), IL - The incidence of non-Hodgkin lymphoma (NHL) increased by more than 80% between 1975 and 1991 in the United States, representing one of the largest increases ... |
Zevalin(R) Following Short-Course Chemotherapy with CHOP + ... - MarketWatch
Zevalin(R) Following Short-Course Chemotherapy with CHOP + ... MarketWatch - Non-Hodgkin's lymphoma (NHL) is caused by the abnormal proliferation of white blood cells and normally spreads through the lymphatic system, ... TOP MARKET NEWS Cell Therapeutics Net Loss Declines as Operating Expenses Decrease ... |
Gloucester Pharmaceuticals to Present Positive Results from ... - MarketWatch
Gloucester Pharmaceuticals to Present Positive Results from ... MarketWatch - ... for the treatment of non-Hodgkin's T-cell lymphomas, including CTCL and PTCL and Orphan status from the EMEA for the treatment of both CTCL and PTCL. ... |
Deborah Dunsire - Nature.com (subscription)
 Nature.com (subscription) | Deborah Dunsire Nature.com (subscription), UK - Enrollment for a pivotal phase 3 trial for Velcade against non-Hodgkin's lymphoma is complete. The company also has another proteasome inhibitor—expected to ... |
MedicineNet Non-Hodgkins Lymphomas Specialty
Copyright 1995-2008 MedicineNet, Inc. All rights reserved.
MedicineNet Non-Hodgkins Lymphomas Specialty
Non-AIDS Cancer Risk Higher for Those With HIV
Title: Non-AIDS Cancer Risk Higher for Those With HIV
Category: Health News
Created: 11/19/2008 8:53:00 AM
Last Editorial Review: 11/19/2008
Swollen Lymph Nodes
Title: Swollen Lymph Nodes
Category: Diseases and Conditions
Created: 11/17/2008
Last Editorial Review: 11/17/2008
Silicone Breast Implants Might Raise Risk of Rare Lymphoma
Title: Silicone Breast Implants Might Raise Risk of Rare Lymphoma
Category: Health News
Created: 11/5/2008 2:00:00 AM
Last Editorial Review: 11/5/2008
CT Scan (Computerized Axial Tomography)
Title: CT Scan (Computerized Axial Tomography)
Category: Procedures and Tests
Created: 12/31/1997
Last Editorial Review: 11/4/2008
Chest X-ray
Title: Chest X-ray
Category: Procedures and Tests
Created: 12/31/1997
Last Editorial Review: 10/23/2008
Poverty Raises Mortality Risk With Non-Hodgkin Lymphoma
Title: Poverty Raises Mortality Risk With Non-Hodgkin Lymphoma
Category: Health News
Created: 10/21/2008 2:00:00 AM
Last Editorial Review: 10/21/2008
Ontak Approved to Treat T-Cell Lymphoma
Title: Ontak Approved to Treat T-Cell Lymphoma
Category: Health News
Created: 10/18/2008 2:00:00 AM
Last Editorial Review: 10/20/2008
Liver Transplant Patients at Higher Cancer Risk
Title: Liver Transplant Patients at Higher Cancer Risk
Category: Health News
Created: 10/11/2008 2:00:00 AM
Last Editorial Review: 10/13/2008
Survival Rates Improve for Kids With Blood Cancers
Title: Survival Rates Improve for Kids With Blood Cancers
Category: Health News
Created: 9/11/2008 2:00:00 AM
Last Editorial Review: 9/11/2008
New Lymphoma Drug Shows Promise
Title: New Lymphoma Drug Shows Promise
Category: Health News
Created: 8/15/2008 2:00:00 AM
Last Editorial Review: 8/15/2008
Cancer
Title: Cancer
Category: Diseases and Conditions
Created: 7/4/2000 6:18:00 AM
Last Editorial Review: 7/23/2008
Incidence of Mantle Cell Lymphoma on Rise
Title: Incidence of Mantle Cell Lymphoma on Rise
Category: Health News
Created: 7/19/2008 2:00:00 AM
Last Editorial Review: 7/21/2008
The Leukemia & Lymphoma Society's LymphomaCAST
Podcast for those living with Hodgkin and non-Hodgkin lymphoma. Sponsored by The Leukemia & Lymphoma Society
NHL: Current Treatments and Emerging Therapies - Part 2
NHL: Current Treatments and Emerging Therapies
September 8, 2008 - Part 2 (Q&A)
This program featured Andrew D. Zelenetz, M.D., Ph.D., Chief, Lymphoma Service, Division of Hematology/Oncology, Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY.
This program was sponsored by The Leukemia & Lymphoma Society, and was supported by an unrestricted educational grant from Genentech BioOncology and Biogen Idec.
For related information go to http://www.leukemia-lymphoma.org/all_page?item_id=492628
NHL: Current Treatments and Emerging Therapies - Part 1
NHL: Current Treatments and Emerging Therapies
September 8, 2008 - Part 1 (Presentation)
This program featured Andrew D. Zelenetz, M.D., Ph.D., Chief, Lymphoma Service, Division of Hematology/Oncology, Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY.
This program was sponsored by The Leukemia & Lymphoma Society, and was supported by an unrestricted educational grant from Genentech BioOncology and Biogen Idec.
For related information go to http://www.leukemia-lymphoma.org/all_page?item_id=492628
Childhood Cancer Survivorship: The Family's Journey Forward
5/29/2008
This program featured Nancy F. Cincotta, M.S.W., L.C.S.W., A.C.S.W., B.C.D., psychosocial director, Camp Sunshine, Casco, ME.
This program was sponsored by The Leukemia & Lymphoma Society.
Progress in NHL Treatment, Part 2
5/20/2008, Part 2
This program on non-Hodgkin lymphoma (NHL) featured John W. Sweetenham, M.D., professor of medicine, director of clinical research, Taussig Cancer Institute, Cleveland Clinic, Ohio.
This program was sponsored by The Leukemia & Lymphoma Society. In collaboration with Abrale.
Progress in NHL Treatment, Part 1
5/20/2008, Part 1
This program on non-Hodgkin lymphoma (NHL) featured John W. Sweetenham, M.D., professor of medicine, director of clinical research, Taussig Cancer Institute, Cleveland Clinic, Ohio.
This program was sponsored by The Leukemia & Lymphoma Society. In collaboration with Abrale.
Progress in Mantle Cell Lymphoma: Update from the Experts 2
4/30/2008 - Part 2
This program featured John P. Leonard, MD, The Richard T. Silver Distinguished Professor of Hematology and Medical Oncology, Weill Cornell Medical College, New York, NY and Brad S. Kahl, MD, Associate Professor of Medicine, Director, Lymphoma Service, University of Wisconsin School of Medicine and Public Health, Madison, WI.
This program was sponsored by The Leukemia & Lymphoma Society and supported by Celgene and Millennium Pharmaceuticals.
Progress in Mantle Cell Lymphoma: Update from the Experts 1
4/30/2008 - Part 1
This program featured John P. Leonard, MD, The Richard T. Silver Distinguished Professor of Hematology and Medical Oncology, Weill Cornell Medical College, New York, NY and Brad S. Kahl, MD, Associate Professor of Medicine, Director, Lymphoma Service, University of Wisconsin School of Medicine and Public Health, Madison, WI.
This program was sponsored by The Leukemia & Lymphoma Society and supported by Celgene and Millennium Pharmaceuticals.
Stem Cell Transplantation: Current Trends/Future Directions
2/21/2008
This program featured Armand Keating, MD, FRCP(C), Professor of Medicine, Director, Division of Hematology, Epstein Chair in Cell Therapy and Transplantation at the University of Toronto. Director, Cell Therapy Program at Princess Margaret Hospital/Ontario Cancer Institute in Toronto, Ontario, Canada.
This program was sponsored by The Leukemia and Lymphoma Society.
Click here for the direct link to the audio:
http://lls.hipcast.com/deluge/c940160b-5502-04f4-cb52-949b96782aaf.mp3
Sexuality and Intimacy After Cancer
3/11/2008
This program featured Sage Bolte, MSW, LCSW, OSW-C, Oncology Counselor, Breast Cancer Program, Life with Cancer® Inova Cancer Services in Fairfax, Virginia.
This program was supported by The Leukemia and Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/deluge/c8641f38-69d9-13d3-34c8-663ded82ead0.mp3
Practical Tips for Managing Your Finances and Insurance 2
11/28/07
This program featured Beth Darnley, chief program officer, Patient Advocate Foundation, Newport News, Virginia and Anita Welborn, LMSW, director, Information Resource Center (IRC), The Leukemia & Lymphoma Society, White Plains, NY.
This program was sponsored by The Leukemia & Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/download/ad858520-9141-1dc0-83f9-d88f41c26ae8.mp3
Advocating For Your Child's Learning Needs
2/13/08
Advocating For Your Child's Learning Needs: Through Treatment and Beyond
This program featured Daniel Armstrong, PhD, professor & associate chair, Department of Pediatrics, director, Mailman Center for Child Development, associate chief of staff, Holtz Children's Hospital at the University of Miami, Jackson Memorial Medical Center, director, University of Miami Sickle Cell Center, Miami, Florida.
This program was part of our Focus on Childhood Cancers Educational Series and was sponsored by The Leukemia and Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/deluge/ceab5a99-d0bd-9b91-fe70-bcf68ea5001c.mp3
Practical Tips for Managing Your Finances and Insurance 1
11/28/07
Cancer Survivorship: Practical Tips for Managing Your Financial and Insurance Issues - Part 1 of 2
This program featured Beth Darnley, chief program officer, Patient Advocate Foundation, Newport News, Virginia and Anita Welborn, LMSW, director, Information Resource Center (IRC), The Leukemia & Lymphoma Society, White Plains, NY.
This program was sponsored by The Leukemia & Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/download/2b62f7e8-7e73-ab61-88c1-70c8794e4aca.mp3
Spotlight on New Discoveries in NHL Part 2
12/12/2007
Update from the American Society of Hematoloty (ASH) Annual Meeting
This program featured Wyndham Wilson, M.D., Ph.D, senior investigator, head, Lymphoma Therapeutics Section, National Cancer Institute, Bethesda, MD.
Alternate link to the audio:
http://lls.hipcast.com/deluge/c191974d-8461-640b-c8af-0f769e8a66da.mp3
Spotlight on New Discoveries in NHL Part 1
12/12/07
This program featured Wyndham Wilson, M.D., Ph.D, senior investigator, head, Lymphoma Therapeutics Section, National Cancer Institute, Bethesda, MD.
Alternate link to the audio:
http://lls.hipcast.com/download/ad3aff9d-08f4-d7ef-9da2-27a89d2385c2.mp3
Non-Hodgkin Lymphoma Treatment Advances
09/12/07
This program featured Jonathan W. Friedberg, MD, MMSc, Associate Professor of Medicine, Director, Inpatient Hematology Service, Director, Hematological Malignancies Clinical Research, University of Rochester, Wilmot Cancer Center, Rochester, NY.
Alternate link to the audio:
http://lls.hipcast.com/download/60b8cf7f-6a7c-0ecb-f9fd-4ed43b48ffbc.mp3
Lymphoma: Understanding the Role of Targeted Therapies
02/28/07
Lymphoma: Understanding the Role of Targeted Therapies
This program featured John P. Leonard, M.D., associate professor of medicine, Weill Medical College of Cornell University, clinical director, Cornell Center for Lymphoma and Myeloma in New York, NY.
This program was supported by an unrestricted educational grant from GlaxoSmithKline Oncology & Acute Care.
Alternate link to the audio:
http://lls.hipcast.com/download/fce0cae2-4e15-aed3-2b68-bb64a7cff978.mp3
Non-Hodgkin Lymphoma (NHL): From Diagnosis to Therapy
05/15/07
This program featured Andrew D. Zelenetz, M.D., chief, Lymphoma Service, Division of Hematology/Oncology, Department of Medicine at Memorial Sloan-Kettering Cancer Center.
Alternate link to the audio:
http://lls.hipcast.com/download/d3ce00b2-529a-c300-997e-35a89d8c2a9d.mp3
Hodgkin Lymphoma Update: Making Treatment Decisions
05/29/07
This program featured Mary K. Gospodarowicz, MD, FRCPC, FRCR (Hon.) medical director, Cancer Program, chief, Radiation Medicine Program at Princess Margaret Hospital, University Health Network, professor and chair, Department of Radiation Oncology at the University of Toronto, Ontario, Canada.
Alternate link to the audio:
http://lls.hipcast.com/download/4487b6f0-d09d-a571-05e8-96e76ae06213.mp3
Powered by FirstRSS Plugin