Non-Hodgkin Lymphoma
Resource for Patient, Family, and Clinician
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This journal is written for the non-Hodgkin lymphoma patient, family members, designated care givers, and friends of the NHL patient. Here we provide a compelling amalgamation of inspirational stories. Here you will also find a news component which should be of some benefit to the non-Hodgkin lymphoma patient, and we provide a chat room and social network which is about NHL and related topics. Our chat room and social network allows for unlimited users and all we ask is that the conversations are kept within the realm of non-Hodgkin lymphoma and related topics.
Here you will find also my own perspective on this cancer, and cancer in general, with the hope that by knowing my story, some benefit may be realized by those who suffer from NHL.
In an effort to provide more information about non-Hodgkin lymphoma, I have also included a book store, which provides books, publications, and articles about non-Hodgkin lymphoma and cancer survival.
My wife was diagnosed with non-Hodgkin lymphoma ( indolent, follicular ) 13 years ago. Her disease is starting to pick up pace and is progressing more rapidly. I developed an understanding of how people around the world were able to conquer their cancer, and have come to the conclusion that indeed there is hope for my wife. I wanted to not only pass this information onto my wife, but also I wanted to make this information public so that it may be beneficial to other non-Hodgkin lymphoma patients by providing hope to their situation.
I have come to the realization that many people around the world have beat many types of cancer, even when told by their doctor they have very little chance of surviving. I have done some research into the capability of the human mind in terms of healing. One of the many aspects of the human mind, that separates us from animals, is that many diseases can be suppressed and in some cases completely eradicated with a positive attitude. In fighting a disease, having the proper attitude can mean the difference between living and dying. The mind does have an affect on the body, and having a positive outlook seems to be one of those major factors when it comes to eradicating a disease. There is of course a biological bases to this, but scientist in this field really do not have an understanding of the underlying mechanism.
What is known is that the human mind does have an effect on the outcome of a disease, and in the case of a positive attitude, the probability is greater for a favorable outcome. In most cases, this does not mean that attitude alone can result in conquering the disease, but rather a positive attitude is an integral component along with proper medical care for eradication of the disease.
A major contribution toward a positive attitude is the assimilation of how other patients were able to conquer their non-Hodgkin lymphoma. There is plenty of information online about non-Hodgkin lymphoma from a biological or medical perspective, but very little information in terms of inspirational stories. Hence the need for this journal.
Along with positive attitude and proper medical care, there is still one more very important component. This very important component is within the area of religion. What I found in my research is that people who statistically did better in terms of their disease, had a belief that God placed them on this earth for a purpose. These people tend to believe that we all have been placed on this earth for a purpose, and by being close to God, then and only then will you realize your purpose. People with this belief system tended to believe that their disease is only temporary and that disease is one of the ways God works in shaping us into the person he wants us to be. The story of Lance Armstrong is a clear example of how God works in shaping and molding us to fulfill his purpose.
The Lance Armstrong story is one of inspiration for not only non-Hodgkin lymphoma patients, but all cancer patients. In 1996 Armstrong discovered that he had testicular cancer, which had spread to his brain and lungs. The American cyclist, was given a 40 percent chance of surviving his cancer. After beating his cancer he won the prestigious Tour de France an unprecedented seven straight times, from 1999-2005. The Tour de France is the most prestigious cycling race in the world, and one of the most grueling events in all of sports. For more information on the Lance Armstrong story go to Lance Armstrong or go to CNN.com - Lance Armstrong. The Lance Armstrong story is truly amazing.
Lance Armstrong has said that if he did not have cancer, he would have not been able to achieve what he accomplished. Remember that in many cases, God gives us disease in order to shape us into the person he wants us to be. God wanted Lance Armstrong to be an inspiration and a beacon of hope for all cancer patients, and that is exactly what Lance Armstrong has become.
The Lance Armstrong story is one most of us know about because he has become a public figure due to media coverage. But believe me, there are similar stories developing every day that are not played out under the watchful eye of the media. So for the non-Hodgkins lymphoma patient, these stories of inspiration can be a catalyst for hope. Miracles do happen and you can be one of them, and if you do survive, the experience will most likely change you for the better, as it did with Lance Armstrong.
The following is a list of inspirational stories for the non-Hodgkin lymphoma patient. Following this list of stories, you will find the most current News From The Leukemia & Lymphoma Society. This news is updated daily.
Stories of Inspiration for the Non-Hodgkin Lymphoma Patient:
Eveyln MacDonald - Stage III Non-Hodgkin Lymphoma
Stage I Intermediate Grade Non-Hodgkin Lymphoma of the Breast
Amy Ardito - Stage IV follicular Non-Hodgkin Lymphoma
Yodfat Glazer - Stage IIIB Non-Hodgkin Lymphoma
Kenneth Shapiro - 25+ Year Survivor of Widely Metastatic Melanoma
My Miracle with NK Cell Leukemia
Terry Healey - At Face Value: My Struggle With A Disfiguring Cancer
Non-Hodgkin Lymphoma - Videos
Non-Hodgkin Lymphoma - Current News
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Lack of Evidence Hinders Cancer Treatment in Elderly - Wall Street Journal
Lack of Evidence Hinders Cancer Treatment in Elderly Wall Street Journal Consider the case of a patient I'll call Ted, an 83-year-old man I treated two years ago for non-Hodgkin's lymphoma, an often-curable form of cancer. ... The Need for New Research to Include Old Patients |
Fred Travalena dies at 66; master impressionist and singer - Los Angeles Times
 Broadway World | Fred Travalena dies at 66; master impressionist and singer Los Angeles Times Travalena, a Vegas performer, talk-show regular and star of his own specials, died of non-Hodgkin's lymphoma. By Dennis McLellan Fred Travalena, ... Impressionist Fred Travalena dead at 66 Impressionist Fred Travalena Dies at 66 Fred Travalena (Los Angeles Times File Photo) |
Improving Survival From Non-Hodgkin's Lymphoma - AIDSmeds.com HIV/AIDS Treatment News
Improving Survival From Non-Hodgkin's Lymphoma AIDSmeds.com HIV/AIDS Treatment News Survival among people with HIV who are diagnosed with non-Hodgkin's lymphoma (NHL) continues to improve, according to an encouraging reported published ... |
5 Cold Stocks Heating Up - Motley Fool
5 Cold Stocks Heating Up Motley Fool Spectrum's non-Hodgkin's lymphoma treatment Zevalin is before the FDA, as the company awaits a decision on whether to expand its non-Hodgkin's lymphoma ... |
Good survival for HIV patients diagnosed with non-Hodgkin's lymphoma - Aidsmap
Good survival for HIV patients diagnosed with non-Hodgkin's lymphoma Aidsmap Two-thirds of HIV-positive individuals with non-Hodgkin's lymphoma are alive a year after its diagnosis, European investigators report in a study published ... |
Patients with certain blood cancers eligible for Quick Disability ... - Examiner.com
Patients with certain blood cancers eligible for Quick Disability ... Examiner.com Mantle Cell Lymphoma - a rare form of Non-Hodgkin Lymphoma (Lymphoma is a cancer of the lymphatic system and is the most common blood cancer. ... |
Vegetarian Health Boost - StaffNurse.com
 Metro | Vegetarian Health Boost StaffNurse.com But we are surprised to see an association between leukaemia, non-Hodgkin lymphoma and multiple myeloma, more research is needed to understand the ... Twelve year study suggests that vegetarians have a lower cancer ... Vegetarians seen less likely to get cancer Vegetarian diet 'lowers risk of cancer' |
After Farrah, Her Doctor's Next Fight: 'She's a Role Model for All ... - Newsweek
 RTT News | After Farrah, Her Doctor's Next Fight: 'She's a Role Model for All ... Newsweek Zevalin, manufactured by Spectrum Pharmaceuticals, is one of two radio-immunotherapies for the treatment of non-Hodgkin's lymphoma. ... Spectrum Pharma's Date With FDA |
Non-Hodgkin lymphoma response evaluation with MRI texture ... - 7thSpace Interactive (press release)
Non-Hodgkin lymphoma response evaluation with MRI texture ... 7thSpace Interactive (press release) To show MRI texture appearance change in non-Hodgkin lymphoma (NHL) during treatment with response controlled by quantitative volume analysis. ... |
Institutional Investors Buy $21 Million Of Spectrum Stock On Eve ... - OfficialWire
Institutional Investors Buy $21 Million Of Spectrum Stock On Eve ... OfficialWire ... whose supplemental Biologics License Application [sBLA] for expanded use as a first line consolidation therapy for patients with non-Hodgkin's lymphoma ... Biotech Stock Mailbag: Spectrum Spectrum Pharmaceuticals to Benefit from FDA Action on Zevalin? 0 ... Afternoon Report - CTIC - Biotech Stock Mailbag: Spectrum |
MedicineNet Non-Hodgkins Lymphomas Specialty
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MedicineNet Non-Hodgkins Lymphomas Specialty
Radiation May Raise Stroke Risk After Hodgkin's
Title: Radiation May Raise Stroke Risk After Hodgkin's
Category: Health News
Created: 6/18/2009 7:00:00 AM
Last Editorial Review: 6/18/2009
Still Too Few Women in Cancer Trials
Title: Still Too Few Women in Cancer Trials
Category: Health News
Created: 6/9/2009 7:00:00 AM
Last Editorial Review: 6/9/2009
Immune-Based Lymphoma Treatment Shows Promise
Title: Immune-Based Lymphoma Treatment Shows Promise
Category: Health News
Created: 6/1/2009 7:00:00 AM
Last Editorial Review: 6/1/2009
More Than 650,000 Cancer Deaths Avoided
Title: More Than 650,000 Cancer Deaths Avoided
Category: Health News
Created: 5/27/2009
Last Editorial Review: 5/28/2009
Hepatitis C
Title: Hepatitis C
Category: Diseases and Conditions
Created: 12/31/1997
Last Editorial Review: 5/22/2009
Health Tip: Why You May Have Swollen Lymph Nodes
Title: Health Tip: Why You May Have Swollen Lymph Nodes
Category: Health News
Created: 5/15/2009 8:56:00 AM
Last Editorial Review: 5/15/2009
Thrombocytopenia (Low Platelet Count)
Title: Thrombocytopenia (Low Platelet Count)
Category: Diseases and Conditions
Created: 5/11/2009
Last Editorial Review: 5/13/2009
People With MS May Have Lower Cancer Risk
Title: People With MS May Have Lower Cancer Risk
Category: Health News
Created: 4/1/2009 2:00:00 AM
Last Editorial Review: 4/1/2009
Hospitals: Can Yours Handle Your Emergency?
Title: Hospitals: Can Yours Handle Your Emergency?
Category: Doctor's Views
Created: 3/16/2009
Last Editorial Review: 3/16/2009
dexamethasone oral, Decadron, DexPak
Title: dexamethasone oral, Decadron, DexPak
Category: Medications
Created: 12/31/1997
Last Editorial Review: 3/12/2009
Childhood Cancer Survivors Not Getting Recommended Mammograms
Title: Childhood Cancer Survivors Not Getting Recommended Mammograms
Category: Health News
Created: 1/28/2009 2:00:00 AM
Last Editorial Review: 1/28/2009
Statin Use Doesn't Inhibit Lymphoma Drug Therapy
Title: Statin Use Doesn't Inhibit Lymphoma Drug Therapy
Category: Health News
Created: 12/10/2008 2:00:00 AM
Last Editorial Review: 12/10/2008
The Leukemia & Lymphoma Society's LymphomaCAST
Podcast for those living with Hodgkin and non-Hodgkin lymphoma. Sponsored by The Leukemia & Lymphoma Society
Emerging Therapies in Leukemia, Lymphoma & Myeloma
Emerging Therapies in Leukemia, Lymphoma & Myeloma
June 16, 2009
This program featured Gail J. Roboz, MD, Associate Professor of Medicine, Director, Leukemia Program, Weill Medical College of Cornell University/New York-Presbyterian Hospital, New York, NY and John P. Leonard, MD, Richard T. Silver Distinguished Professor of Hematology and Medical Oncology, Professor of Medicine, Weill Medical College of Cornell University/New York-Presbyterian Hospital, Clinical Director, New York - Cornell Center for Lymphoma and Myeloma, New York, NY and Robert Z. Orlowski, MD, PhD, Director, Myeloma Section, Associate Professor, Departments of Lymphoma/Myeloma and Experimental Therapeutics, Division of Cancer Medicine, The University of Texas, MD Anderson Cancer Center, Houston, TX.
This program was supported in part by Celgene.
News on NHL from the ASH Annual Meeting - Part 2
12/18/2008 - Part 2 (Q&A)
News on NHL from the American Society of Hematology (ASH) Annual Meeting
This program featured Bruce D. Cheson, MD, FACP, Professor of Medicine, Head of Hematology, Director, Hematology Research, Lombardi Cancer Center, Georgetown University Hospital, Washington, DC.
This program was sponsored by The Leukemia & Lymphoma Society and was supported by an educational grant from Genentech BioOncology and Biogen Idec.
News on NHL from the ASH Annual Meeting - Part 1
12/18/2008 - Part 1 (Presentation)
News on NHL from the American Society of Hematology (ASH) Annual Meeting
This program featured Bruce D. Cheson, MD, FACP, Professor of Medicine, Head of Hematology, Director, Hematology Research, Lombardi Cancer Center, Georgetown University Hospital, Washington, DC.
This program was sponsored by The Leukemia & Lymphoma Society and was supported by an educational grant from Genentech BioOncology and Biogen Idec.
Childhood Leukemia and Lymphoma: An Update
Childhood Leukemia and Lymphoma: An Update on Current and Emerging Therapies
This program featured Sima Jeha, M.D., Director, Leukemia/Lymphoma Developmental Therapeutics, Department of Oncology, St. Jude Children's Research Hospital, Memphis, TN.
This program was sponsored by The Leukemia & Lymphoma Society and was supported by a grant from The Jeff Gordon Foundation.
NHL: Current Treatments and Emerging Therapies - Part 2
NHL: Current Treatments and Emerging Therapies
September 8, 2008 - Part 2 (Q&A)
This program featured Andrew D. Zelenetz, M.D., Ph.D., Chief, Lymphoma Service, Division of Hematology/Oncology, Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY.
This program was sponsored by The Leukemia & Lymphoma Society, and was supported by an unrestricted educational grant from Genentech BioOncology and Biogen Idec.
For related information go to http://www.leukemia-lymphoma.org/all_page?item_id=492628
NHL: Current Treatments and Emerging Therapies - Part 1
NHL: Current Treatments and Emerging Therapies
September 8, 2008 - Part 1 (Presentation)
This program featured Andrew D. Zelenetz, M.D., Ph.D., Chief, Lymphoma Service, Division of Hematology/Oncology, Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, NY.
This program was sponsored by The Leukemia & Lymphoma Society, and was supported by an unrestricted educational grant from Genentech BioOncology and Biogen Idec.
For related information go to http://www.leukemia-lymphoma.org/all_page?item_id=492628
Childhood Cancer Survivorship: The Family's Journey Forward
5/29/2008
This program featured Nancy F. Cincotta, M.S.W., L.C.S.W., A.C.S.W., B.C.D., psychosocial director, Camp Sunshine, Casco, ME.
This program was sponsored by The Leukemia & Lymphoma Society.
Progress in NHL Treatment, Part 2
5/20/2008, Part 2
This program on non-Hodgkin lymphoma (NHL) featured John W. Sweetenham, M.D., professor of medicine, director of clinical research, Taussig Cancer Institute, Cleveland Clinic, Ohio.
This program was sponsored by The Leukemia & Lymphoma Society. In collaboration with Abrale.
Progress in NHL Treatment, Part 1
5/20/2008, Part 1
This program on non-Hodgkin lymphoma (NHL) featured John W. Sweetenham, M.D., professor of medicine, director of clinical research, Taussig Cancer Institute, Cleveland Clinic, Ohio.
This program was sponsored by The Leukemia & Lymphoma Society. In collaboration with Abrale.
Progress in Mantle Cell Lymphoma: Update from the Experts 2
4/30/2008 - Part 2
This program featured John P. Leonard, MD, The Richard T. Silver Distinguished Professor of Hematology and Medical Oncology, Weill Cornell Medical College, New York, NY and Brad S. Kahl, MD, Associate Professor of Medicine, Director, Lymphoma Service, University of Wisconsin School of Medicine and Public Health, Madison, WI.
This program was sponsored by The Leukemia & Lymphoma Society and supported by Celgene and Millennium Pharmaceuticals.
Progress in Mantle Cell Lymphoma: Update from the Experts 1
4/30/2008 - Part 1
This program featured John P. Leonard, MD, The Richard T. Silver Distinguished Professor of Hematology and Medical Oncology, Weill Cornell Medical College, New York, NY and Brad S. Kahl, MD, Associate Professor of Medicine, Director, Lymphoma Service, University of Wisconsin School of Medicine and Public Health, Madison, WI.
This program was sponsored by The Leukemia & Lymphoma Society and supported by Celgene and Millennium Pharmaceuticals.
Stem Cell Transplantation: Current Trends/Future Directions
2/21/2008
This program featured Armand Keating, MD, FRCP(C), Professor of Medicine, Director, Division of Hematology, Epstein Chair in Cell Therapy and Transplantation at the University of Toronto. Director, Cell Therapy Program at Princess Margaret Hospital/Ontario Cancer Institute in Toronto, Ontario, Canada.
This program was sponsored by The Leukemia and Lymphoma Society.
Click here for the direct link to the audio:
http://lls.hipcast.com/deluge/c940160b-5502-04f4-cb52-949b96782aaf.mp3
Sexuality and Intimacy After Cancer
3/11/2008
This program featured Sage Bolte, MSW, LCSW, OSW-C, Oncology Counselor, Breast Cancer Program, Life with Cancer® Inova Cancer Services in Fairfax, Virginia.
This program was supported by The Leukemia and Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/deluge/c8641f38-69d9-13d3-34c8-663ded82ead0.mp3
Practical Tips for Managing Your Finances and Insurance 2
11/28/07
This program featured Beth Darnley, chief program officer, Patient Advocate Foundation, Newport News, Virginia and Anita Welborn, LMSW, director, Information Resource Center (IRC), The Leukemia & Lymphoma Society, White Plains, NY.
This program was sponsored by The Leukemia & Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/download/ad858520-9141-1dc0-83f9-d88f41c26ae8.mp3
Advocating For Your Child's Learning Needs
2/13/08
Advocating For Your Child's Learning Needs: Through Treatment and Beyond
This program featured Daniel Armstrong, PhD, professor & associate chair, Department of Pediatrics, director, Mailman Center for Child Development, associate chief of staff, Holtz Children's Hospital at the University of Miami, Jackson Memorial Medical Center, director, University of Miami Sickle Cell Center, Miami, Florida.
This program was part of our Focus on Childhood Cancers Educational Series and was sponsored by The Leukemia and Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/deluge/ceab5a99-d0bd-9b91-fe70-bcf68ea5001c.mp3
Practical Tips for Managing Your Finances and Insurance 1
11/28/07
Cancer Survivorship: Practical Tips for Managing Your Financial and Insurance Issues - Part 1 of 2
This program featured Beth Darnley, chief program officer, Patient Advocate Foundation, Newport News, Virginia and Anita Welborn, LMSW, director, Information Resource Center (IRC), The Leukemia & Lymphoma Society, White Plains, NY.
This program was sponsored by The Leukemia & Lymphoma Society.
Alternate link to the audio:
http://lls.hipcast.com/download/2b62f7e8-7e73-ab61-88c1-70c8794e4aca.mp3
Spotlight on New Discoveries in NHL Part 2
12/12/2007
Update from the American Society of Hematoloty (ASH) Annual Meeting
This program featured Wyndham Wilson, M.D., Ph.D, senior investigator, head, Lymphoma Therapeutics Section, National Cancer Institute, Bethesda, MD.
Alternate link to the audio:
http://lls.hipcast.com/deluge/c191974d-8461-640b-c8af-0f769e8a66da.mp3
Spotlight on New Discoveries in NHL Part 1
12/12/07
This program featured Wyndham Wilson, M.D., Ph.D, senior investigator, head, Lymphoma Therapeutics Section, National Cancer Institute, Bethesda, MD.
Alternate link to the audio:
http://lls.hipcast.com/download/ad3aff9d-08f4-d7ef-9da2-27a89d2385c2.mp3
Non-Hodgkin Lymphoma Treatment Advances
09/12/07
This program featured Jonathan W. Friedberg, MD, MMSc, Associate Professor of Medicine, Director, Inpatient Hematology Service, Director, Hematological Malignancies Clinical Research, University of Rochester, Wilmot Cancer Center, Rochester, NY.
Alternate link to the audio:
http://lls.hipcast.com/download/60b8cf7f-6a7c-0ecb-f9fd-4ed43b48ffbc.mp3
Lymphoma: Understanding the Role of Targeted Therapies
02/28/07
Lymphoma: Understanding the Role of Targeted Therapies
This program featured John P. Leonard, M.D., associate professor of medicine, Weill Medical College of Cornell University, clinical director, Cornell Center for Lymphoma and Myeloma in New York, NY.
This program was supported by an unrestricted educational grant from GlaxoSmithKline Oncology & Acute Care.
Alternate link to the audio:
http://lls.hipcast.com/download/fce0cae2-4e15-aed3-2b68-bb64a7cff978.mp3
Non-Hodgkin Lymphoma (NHL): From Diagnosis to Therapy
05/15/07
This program featured Andrew D. Zelenetz, M.D., chief, Lymphoma Service, Division of Hematology/Oncology, Department of Medicine at Memorial Sloan-Kettering Cancer Center.
Alternate link to the audio:
http://lls.hipcast.com/download/d3ce00b2-529a-c300-997e-35a89d8c2a9d.mp3
Hodgkin Lymphoma Update: Making Treatment Decisions
05/29/07
This program featured Mary K. Gospodarowicz, MD, FRCPC, FRCR (Hon.) medical director, Cancer Program, chief, Radiation Medicine Program at Princess Margaret Hospital, University Health Network, professor and chair, Department of Radiation Oncology at the University of Toronto, Ontario, Canada.
Alternate link to the audio:
http://lls.hipcast.com/download/4487b6f0-d09d-a571-05e8-96e76ae06213.mp3
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